HELPLINE: 1-800-263-5404  |  Calls answered Mon - Fri from 9:30am to 4pm EST

Brain Injury SpeaksWhat is Brain Injury Speaks?

Brain Injury Speaks is a growing community of more than 500 people impacted by brain injury. Simply put, Brain Injury Speaks is about providing persons directly impacted by brain injury with a “seat at the table” and viewing brain injury care in Ontario through the eyes of individuals who are living with it.

Why Stakeholder Engagement?

When it comes to improving health care, actively listening to individuals with lived experience matters. There is a growing consensus that the involvement of patients in the decision making process of their own care is vital to improving quality, safety and health outcomes.

How Do We Know That it Works?

A systemic review by Doyle and colleagues concluded:

“Patient experience is positively associated with clinical effectiveness and patient safety, and supports the case of the inclusion of patient experience as one of the central pillars of quality in healthcare.”¹

Health Quality Ontario (HQO) further highlights the benefits of stakeholder engagement in their recent revision of quality improvement plans, explaining:

“When healthcare is perceived through the eyes of the patient and their family and/or caregivers, research shows that the quality of care rises, costs decrease, provider satisfaction increases, and the patient care experience improves.”²

  1. Doyle, C., L. Lennox and D. Bell, 2013. “A Systematic Review of Evidence of the Links Between Patient Experience and Clinical Safety and Effectiveness.” BMJ Open 3:e001570 doi: 10.1136/ bmjopen-2012-001570
  2. Health Quality Ontario. 2014. Hospital Quality Improvement Plans: An Analysis for Improvement (p. 55). Toronto, ON: Queen’s Printer.

Why join the Brain Injury Stakeholder Engagement Network?

As a member, you will become a part of an exciting and growing community to improve the care and support of those living with brain injury. With already 500+ members, we are hoping to double this in the next year. The more members we have, the stronger our voice will be.

Why Should I Join Brain Injury Speaks

  • You will be able to share your experiences with brain injury.
  • Connect and engage with others living with brain injury, family members and caregivers.
  • Identify gaps in care in the community and the healthcare system.

 

 

Why Does the Network Need You?

  • You will be able to share your experiences with brain injury.
  • Connect and engage with others living with brain injury, family members and caregivers.
  • Identify gaps in care in the community and the healthcare system.

What Will My Role Be?

  • Voice your ideas, challenges, and thoughts through emails, phone calls, and surveys.
  • Actively engage with “The Voice: Brain Injury Speaks Monthly Newsletter” in order to stay up-to-date on current research, policies, and fellow members’ experiences.
  • Share your story with “Voices of Brain Injury: A Photovoice Collective”.
  • Participate in current and future Brain Injury Speaks research projects.

Current Issue of “The Voice:
Brain Injury Speaks Newsletter”

The Voice Issue 5 November 2021 newsletter cover

Click Here to View the Current Issue

 

Back Issues:

Vol 4 – October 2021,  Vol 3 – September 2021,
Vol 2 – August 2021,  Vol 1 – July 2021

Voices of Brain Injury:
A Photovoice Collective

We are pleased to present an opportunity for network members to share their stories with our upcoming newsletter segment, “Voices of Brain Injury”. “Voices of Brain Injury” will be featured monthly in The Voice: Brain Injury Speaks Newsletter, aiming to spotlight selected members’ experiences.  

Entering a submission will give you the opportunity to have your story selected for upcoming newsletters. Submissions will require you to share a photo that you feel best depicts your experience with brain injury, along with an explanation of why that image is meaningful to your story. Photos can be of yourself, but do not have to be, and should provide an illustration of your experience. Choice of the photo is left to your discretion but must be appropriate for general audiences. You will have the option to change your name for privacy purposes, if your story is selected.

This is an opportunity to share your experience with brain injury, and ultimately strengthen the voice of this community. If you would like to share your story, please click the button below.  

We are grateful for your participation and are looking forward to sharing and listening to your stories!

Click Here to Share Your Voice

Current Projects by the Brain Injury Speaks Network

Social
Isolation
October 2021

Click Here to View

Social Media
Safety
November 2021

Click Here to View

Contact

If you have any questions or concerns about the Network, please do not hesitate to reach out to us
by email at braininjuryspeaks@obia.on.ca,
or by phone at 1- 855-642-8877, ext. 255.

Past Projects by the Brain Injury Speaks Network

Housing
Challenges
October 2020

Click Here to View

COVID-19
Impact Survey
July 2020

Click Here to View

COVID-19 Impact Complete
Qualitative Survey Summary
September 2020

Click Here to View

Accessing Primary & Virtual
Care Quantitative Summary
July 2020

Click Here to View

Ontario
Health Teams
February 2020

Click Here to View

Funding for Brain Injury Speaks is provided by the Ministry of Health/Ministry of Long-Term Care, Strategic Policy, Planning and French Language Services Division

Government of Ontario logo

X

Search


Next
Skip to content